(818) 880-9007 (in California)
Find local chapters in your community. This website also has a patient services resource directory, a listing of clinical trials, and a reference for finding clinics and medical centers that specialize in ALS.
ALS Division of Muscular Dystrophy Association
The MDA has leveraged its extensive national network to provide support services for persons with ALS. Programs include equipment loans and assistance for the repair of equipment, as well as chat rooms and a listing of ALS medical centers and research trials through out the country.
ALS Therapy Development Institute
This non-profit research organization is focused on finding a cure for ALS, but they also provide a venue for patients and families to connect in community across the country.
Participate in message forums on a variety of topics, including living with ALS and ALS research.
Built by patients and families coping with ALS, these webpages allow individuals to share their experiences, triumphs and concerns. Create a page for your family.
Please Note: St. Lawrence Valley does not specifically endorse the activities of these organizations, but offers their information as a sample of the kinds of materials and services that are available.